Jesy Nelson was moved to tears as her twins wore spinal vests and braces during the heatwave following their SMA diagnosis.
The 35-year-old singer revealed in January that her 14-month-old twins, Ocean and Story, had been diagnosed with SMA type 1.
Spinal muscular atrophy is an inherited genetic disease that damages motor neurons in the spinal cord.
In a heartbreaking Instagram post on Friday, Jesy told fans that her twins had to wear the vest and braces to prevent any damage.
She wrote: “I cried all day. Imagine having to wear a spinal vest and braces in this heat. I can’t even begin to tell you how much this breaks my heart into a million pieces.
“But if I don’t put them there every day, their spine and feet will only deteriorate and get worse.”
“These will never correct their spine or feet, it will only prevent the situation from getting worse.”
“Once again, no future SMA baby should suffer like this if they have a heel test and treatment from birth!”
In June, Jesy said she had been left “heartbroken and outraged” as she vowed to “keep fighting” after attending Parliament for the MPs’ debate on birth screening for SMA.
